Saturday, June 6, 2015
Background
I'd like to start with some background on myself and my MS. I am a 38 year old Male ms patient originally diagnosed in January of 2004. I have most likely had it since the late 90s. I experienced my first symptoms in 1999 when I had a lazy eye. I went to a neurologist and ended up doing a cat scan and got a prism put over my left eye glasses area to correct it. I thought that was it but over the next 4 years more symptoms would begin to manifest. I had a lot of heat tolerance and gait issues over this time. Then in January of 2003 I fell and broke my ankle on both sides on my left leg. I ended up not going in medical care so it healed wrong. I had to have surgery to re-break the ankle and reset the healing time back another 3 months. After a total of 6 months I still was not able to walk. It went on for over a year and finally I saw a doctor who found a tremor in my foot and she sent me to a neurologist. He immediately narrowed it down to 2 diagnoses. A brain tumor or MS. I was admitted into the hospital and got an MRI. Sure enough they found lesions in my brain that confirmed the MS diagnosis. I ended up getting 5 days of IV steroids and then spent a month with in patient physical therapy. After relearning how to walk I started on a walker. I then graduated to a cane. My first neurologist was a firm believer in treating the disease aggressively and I have taken that philosophy to heart. My first MS drug was Avonex and I took this for a couple of years. It was not very effective and had the flu like symptoms which is common to interferons. I then finally was able to get on Tysabri and this got me off from disability and to work full time again. I ended up taking this for 7 years until it stopped being effective. During this time I had a PML scare and had to sweat out the weekend waiting for an MRI to see if it was this diagnosis or not. Luckily it was not and I got IV steroids again for a relapse and then started on Tecfidera as a stop gap medication until I was to be taking Lemtrada. This was the start of a very interesting journey that I will detail later.
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